What it means to have POTS


My Favorite POTSie got to be a part of something this week that meant she had to push herself every day.  She didn’t have to push to learn or do better, she had to push to get up and go at 9am when she is not really functional before 12pm.  She pushed herself to do something that she truly loves and excels at.

She went to theater camp! She got to play a role in a piece of  HighSchool Musical that was way outside her comfort zone and she did all of this while struggling with very high heart rates.

Today they did the ‘review’ of what they had learned and she had her POTS shirt on.  This brought tears to my eyes as I realized that even with a chronic illness she is still doing what she loves.  She is getting up and going when her body is screaming for her to go back to bed.

Today it was Nicole 1 POTS 0.



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