This article about dealing with a child who is in chronic pain is very telling. The author says “I have learnt that sometimes chronic pain in the classroom is best dealt with as you would a learning disability, rather than a physical disability.” I can’t express how much this has helped us with Nicole. Her teachers treat her issues as a learning disability providing her extra time to understand and test. This ensures that she can take the time that she needs.
We are just beginning to bridge the pain issues, altho they are something she’s dealt with for years. I know that we will have to cross that bridge when it becomes clear that she is no longer able to handle pain. What I find very interesting in kids with chronic pain is their threshold for what hurts and what doesn’t. Most kids would be inconsolable in the level of pain that my child deals with on a regular basis. For her, its just normal. This makes dealing with issues difficult because if you ask her about a scale to 1 – 10 her pain is often an 8, what doctors fail to understand is that for her it probably is an 8 she’s just learned to handle it at that level.